This interactive activity allows you to explore and share your views on the question:

How should extended genetic testing be used when screening newborn babies for cystic fibrosis?

Two ways to introduce extended genetic testing are being considered: a ‘Specific’ test and a ‘Sensitive’ test. We would like to know which approach you prefer. 

The potential impact of the two different approaches are explored through videos of parents’ stories, and an interactive workbook on the ‘Helping You Decide‘ page.  

It is recommended that you read the information, and play through all of the videos to give you the best possible understanding, answering some questions as you go. This will take approximately 40 minutes. When you have finished you will then be asked to decide which approach to testing you consider to be the most acceptable. 

If you are confident you understand enough already, please go straight to: ‘You Decide’, if not please read more about the following:

Cystic Fibrosis
Newborn Screening
Test Outcomes
Genetic Testing
Specific and Sensitive Tests